Resources for Families Affected by Sudden Cardiac Arrest

MyGrief.ca – Online modules on grief, covering different types of death and general information, to help you navigate your grief process

https://mygrief.ca/

Online course for bereaved parents and families

https://www.davidkesslertraining.com/parents

The Compassionate Friends – international, non-profit, non-denominational, self-help organization offering peer support, understanding, and grief education to parents, siblings, and grandparents, who have experienced the death of a child, at any age from any cause

International

https://www.compassionatefriends.org/

Canada

https://tcfcanada.net/

KidsGrief.ca – Online modules on supporting children in their grief

https://kidsgrief.ca/

YouthGrief.ca – Support developed by grieving youths for grieving youths

https://youthgrief.ca/

Children and Youth Grief Network – Information and resources on supporting children and teens in their grief

https://www.childrenandyouthgriefnetwork.com/

Soaring Spirits International – Connecting widowed people through support groups and activities

https://soaringspirits.org/

Good Grief Healing – Connect to resources, professionals specializing in grief, and groups in Ontario

https://goodgriefhealing.ca/

Bereaved Families of Ontario – Connect with others experiencing similar types of losses and at a similar life stage

https://bfotoronto.ca/

Hearts in Rhythm Organization – HiRO: https://hiro.heartsinrhythm.ca/

A national organization dedicated to improving awareness and understanding of inherited heart rhythm (IHR) conditions, standardizing health care in Canada and preventing the tragedy of sudden cardiac arrest. They have a very extensive list of resources on their toolkit page and explanations about different types of inherited cardiac diseases like hypertrophic cardiomyopathy (HCM), ARVC – Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC), SADS (Sudden Arrhythmic Death Syndromes), Long QT Syndrome (LQTS), Catecholaminergic polymorphic ventricular tachycardia (CPVT), Brugada Syndrome (BrS) and idiopathic ventricular fibrillation (IVF).

The Canadian SADS Foundation – https://www.sads.ca/

A national organization dedicated to SADS (Sudden Arrhythmic Death Syndromes), which are a variety of cardiac arrhythmia disorders that are often genetic and can be responsible for sudden death in young, apparently healthy people. They have booklets about different conditions including: Sudden Arrhythmic Death Syndromes (SADS), long QT syndrome, hypertrophic cardiomyopathy (HCM), Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) and cardiac channelopathies.

ARVC Family Support – https://www.arvcfamilysupport.org/

Website that seeks to support families impacted by ARVC and support ARVC research.

Heart and Stroke Community of Survivors on Facebook

https://www.heartandstroke.ca/heart-disease/recovery-and-support/the-power-of-community

INSPIRE Sudden Cardiac Arrest Association –connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Sudden Cardiac Arrest Association, an Inspire trusted partner.

https://www.inspire.com/groups/sudden-cardiac-arrest-association/