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logologo
  • Home
  • About Our Work
    • C-SCAN
    • AED Registry
    • SCA During Exercise Study
  • About Us
  • C.A.R.E.
    • Who We Are
    • Member Profiles
    • Family Stories
    • News and Events
    • Resources for Families Affected by Sudden Cardiac Arrest
  • For Patients
    • Received a Letter About C-SCAN?
    • Had a Sudden Cardiac Arrest?
    • I Have Risk Factors for Sudden Cardiac Arrest
  • For Investigators
  • Resources
  • FAQs
  • News
  • Contact

Received a Letter About C-SCAN?

I received a letter in the mail about C-SCAN - why are they contacting me?

We contacted you because our records showed that you were treated by Emergency Medical Services (EMS) and/or Fire personnel for a sudden cardiac arrest (sudden stoppage of the heart). Because we collected your data under a waiver of consent (without your permission) from your EMS record, we are contacting you to see if you still want your data used for research purposes. We could not ask for your permission before collecting your data as you were not conscious or breathing when you had your cardiac arrest.

I want to opt out of this research – how do I do that?

If you no longer want to participate in the research study, you may contact us at any time. Please email: katie.allan@unityhealth.to or call: 416-864-6060 x.76347 to let us know. Please provide your full name and when you had your cardiac arrest so that we can make sure to remove all of your data from the database.

Why is C-SCAN collecting my data?

C-SCAN is a national network of scientists, doctors, paramedics, coroners, medical examiners, statisticians and patients, all working together to try and understand how many Canadians experience a sudden cardiac arrest (sudden stoppage of the heart) each year. We don’t actually know how many people suffer a sudden cardiac arrest event each year and why. If we can figure out how many Canadians are affected by it and why their hearts stopped, we can then design better treatments or ways to prevent it from happening in the first place.

How is my personal data kept private and secure?

All patient data that is entered into the C-SCAN database is de-identified. This means that all of your personal health identifiers have been removed from the data so that you cannot be identified personally. This data is securely stored on a St. Michael’s Hospital server and can only be accessed at St. Michael’s Hospital, by designated research study staff. All research staff have been properly trained and signed confidentiality agreements, so they know how to properly access your data.

How can I get involved?

We have several patient partners who help us with our research. Our patient partners help with the design of the study, its implementation as well as identifying the important research questions that we need to ask. We always welcome input from patient partners. If you would like more information or to speak to someone, please email C-SCAN@smh.ca.

C-SCAN is a result of collaboration between the Canadian Resuscitation Outcomes Consortium (CanROC) and the Cardiac Arrhythmia Network of Canada (CANet). Aimed at reducing the risk of sudden cardiac death (SCA) and potential therapies for patients who are at highest risk for SCA.

Address

C-SCAN at St Michael’s Hospital
30 Bond Street
Toronto, Ontario
M5B 1W8 Canada

Telephone: 416 864 6060
Email: CSCAN@smh.ca

Latest News

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Canadian Sudden Cardiac Arrest Network Follow

A national registry of sudden cardiac arrests across Canada. #CSCAN #CANet #CanROC #NCE @canrocresearch Contact us: cscan@smh.ca

c_scan_
Retweet on Twitter Canadian Sudden Cardiac Arrest Network Retweeted
Nicholas Grubic @nickgrubic ·
10 Mar

How does the public respond to the #CardiacArrest of an #athlete?

We used Twitter data to quantify the range of emotions + opinions following the SCA of #DamarHamlin.

1️⃣ Top emotions: trust, anticipation
2️⃣ Opinions: 64% 👎, 36% 👍
3️⃣ CPR/AED use = fear

https://doi.org/10.1016/j.ajem.2023.03.015

Retweet on Twitter Canadian Sudden Cardiac Arrest Network Retweeted
Lisa Thompson @lisathompsonpc ·
22 Feb

Thank you to the #AED Foundation and @CARE4Hearts for coming to Queen’s Park so we can learn about the important work they do to support cardiovascular health. I also spoke to them about the amazing work @DaveMounseyFund is committed to!

Retweet on Twitter Canadian Sudden Cardiac Arrest Network Retweeted
Steve Clark @steveclarkpc ·
21 Feb

It was a pleasure to welcome Roberta Scott & Dan Shire to Queen’s Park today and hear about the great work they’re doing with AED Foundation Ontario & @CARE4Hearts.

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