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logologo
  • Home
  • About Our Work
    • C-SCAN
    • AED Registry
    • C.A.R.E.
    • SCA During Exercise Study
  • About Us
  • For Patients
    • Received a Letter About C-SCAN?
    • Had a Sudden Cardiac Arrest?
    • I Have Risk Factors for Sudden Cardiac Arrest
  • For Investigators
  • Resources
  • FAQs
  • News
  • Contact

Received a Letter About C-SCAN?

I received a letter in the mail about C-SCAN - why are they contacting me?

We contacted you because our records showed that you were treated by Emergency Medical Services (EMS) and/or Fire personnel for a sudden cardiac arrest (sudden stoppage of the heart). Because we collected your data under a waiver of consent (without your permission) from your EMS record, we are contacting you to see if you still want your data used for research purposes. We could not ask for your permission before collecting your data as you were not conscious or breathing when you had your cardiac arrest.

I want to opt out of this research – how do I do that?

If you no longer want to participate in the research study, you may contact us at any time. Please email: katie.allan@unityhealth.to or call: 416-864-6060 x.76347 to let us know. Please provide your full name and when you had your cardiac arrest so that we can make sure to remove all of your data from the database.

Why is C-SCAN collecting my data?

C-SCAN is a national network of scientists, doctors, paramedics, coroners, medical examiners, statisticians and patients, all working together to try and understand how many Canadians experience a sudden cardiac arrest (sudden stoppage of the heart) each year. We don’t actually know how many people suffer a sudden cardiac arrest event each year and why. If we can figure out how many Canadians are affected by it and why their hearts stopped, we can then design better treatments or ways to prevent it from happening in the first place.

How is my personal data kept private and secure?

All patient data that is entered into the C-SCAN database is de-identified. This means that all of your personal health identifiers have been removed from the data so that you cannot be identified personally. This data is securely stored on a St. Michael’s Hospital server and can only be accessed at St. Michael’s Hospital, by designated research study staff. All research staff have been properly trained and signed confidentiality agreements, so they know how to properly access your data.

How can I get involved?

We have several patient partners who help us with our research. Our patient partners help with the design of the study, its implementation as well as identifying the important research questions that we need to ask. We always welcome input from patient partners. If you would like more information or to speak to someone, please email C-SCAN@smh.ca.

C-SCAN is a result of collaboration between the Canadian Resuscitation Outcomes Consortium (CanROC) and the Cardiac Arrhythmia Network of Canada (CANet). Aimed at reducing the risk of sudden cardiac death (SCA) and potential therapies for patients who are at highest risk for SCA.

Address

C-SCAN at St Michael’s Hospital
30 Bond Street
Toronto, Ontario
M5B 1W8 Canada

Telephone: 416 864 6060
Email: CSCAN@smh.ca

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Canadian Sudden Cardiac Arrest NetworkFollow

A national registry of sudden cardiac arrests across Canada. #CSCAN #CANet #CanROC #NCE @canrocresearch Contact us: cscan@smh.ca

Canadian Sudden Cardiac Arrest Network
Retweet on TwitterCanadian Sudden Cardiac Arrest Network Retweeted
BC Place@bcplace·
7 Feb

BC Place will glow red today for the start of #CHDAwarenessWeek ❤️ The initiative promotes awareness and education about congenital heart defects, which affect approximately 1 in 100 Canadian newborns and their families. Learn more at http://www.cchaforlife.org @cchaforlife #CHD

Twitter 1358475613888217098
Retweet on TwitterCanadian Sudden Cardiac Arrest Network Retweeted
Debroah C@msgigglesalways·
6 Feb

@c_scan_ As a SCA survivor 9 months ago how lucky to have a coworker help save my life by performing CPR for 8 mins. Extremely greatful 🙏 ❤

Twitter 1358039655632023557
Canadian Sudden Cardiac Arrest Network@c_scan_·
5 Feb

#SCA happens to anyone at anytime. Learn how. #CPRSavesLives #AEDsSaveLives #BeATrystander

Paul Snobelen@PSnobelen

Hear it from a Cardiac Arrest Survivor. One of my greatest joys is the ability to engage with cardiac arrest survivors. It makes what I do day-to-day feel rewarding and humbling. #CPR & #AED can improve survival & we all have the ability to help. https://twitter.com/Katrysha/status/1357152117320990723

Twitter 1357821993828106241
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